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Infantile spasms-psychomotor retardation-progressive brain atrophy-basal ganglia disease syndrome

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Disease definition

A rare, genetic disorder of thiamine metabolism and transport characterized by infantile spasms progressing to symptomatic generalized or partial seizures, severe global developmental delay, progressive brain atrophy, and bilateral thalamic and basal ganglia lesions.

ORPHA:263410

Classification level: Disorder

Prevalence: <1 / 1 000 000

Inheritance: Autosomal recessive

Age of onset: Infancy, Neonatal

ICD-10: E88.8

OMIM: 607483

UMLS: C5190692

A summary on this disease is available in Français, Español, Italiano, Nederlands, Polski
Detailed information

Logo ERN: produced/endorsed by ERN(s) Logo FSMR: produced/endorsed by FSMR(s)

Guidelines
Emergency guidelines
Français (2020.pdf) - Orphanet Urgences
Disease review articles
Clinical genetics review
English (2025) - GeneReviews
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